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Saturday, October 1, 2011

I dont CARE about the NAYSAYERS, Proof is in the puddin BABY

This week I had someone leave a few comments from an individual who suffers from an IBD that were not to favorable. I'm all about constructive criticism but most naysayers or pessimists that contact me via email, comment etc saying there is no cure, your providing false hope, what do you know.....bla bla spend their energy spreading negative BS rather than actually being proactive to deliver value to peoples lives rather than taking it from them. I believe in a concept called Kaizen- Japanese for "improvement", or "change for the better" refers to philosophy or practices that focus upon continuous improvement of process. I walk the walk as I always ask myself how can I deliver and construct my information better so that I can help more people.

Check below fore some amazingly inspirational comments I have recieved in the last 1 year (since I have been keeping track)  Regardless of any naysayers opinions even one of these amazing comments is worth everything!!! It took me a solid hour to find these emails and I was almost brought to tears realizing the reach of my website and how many people it has really helped. I sincerely thank everyone who has taken the time to write me how my website has touched you or your family because this feedback keeps me inspired and humbles me at the same time. I also encourage others who have not wrote me to do so as this feedback will add value to my content or allow me to adjust my approach so I can better serve the people seeking help. 

 I know I'm a bold blunt individual and I will not apologize for that to ANYONE. I do not see the world as a bad place, I believe diseases are curable-I have seen this case after case, I believe its crucial to pay it forward and help others. So for all you naysayers and pessimists save your energy because you're preaching to the choir boy. Life is all about Choices..................and I'm choosing to ignore the Negative Betty's :) 

Hi Jay,During the winter, I wrote to you for some support about my son, Jimmy, (my 13 yr old Crohn’s boy).  I just wanted to tell you he’s doing fantastic.  His blood values are all normal he’s gained about 25 lbs and he’s back to being a 13 year old.  He’s still on SCD and that seems to be working out just fine.  He went camping with his boy scout troop and after a few days of the supplied crappy food, the scouts were wanting to trade Jimmy for the healthy yummy food that he brought for himself!  This made Jimmy feel really good about what he was doing.Thanks so much for all your positive words and encouragement.  I was so worried back then and thought that this day may be just a pipe dream.  You’re right that he really cherishes his good health.  He’s getting ready to enter 9th grade and he made the High School Golf Team.  He also earned his Rock Climbing Merit badge in May.  I feel your words came at the exact right time when I could have easily chose to go the typical medication route thus jeopardizing Jimmy immune system.  Jimmy is starting to grow and he turns 14 next week.   It’ll be so exciting watching him turn into a big, strong, healthy man! The GI is totally flabbergasted.  This doctor, who has been in practice for 40 years, told Jimmy he felt so educated by us and lucky that we chose him to help us.   I told him he had the open mind we were looking for.
Take care and I hope you continue to improve lives and touch those in need. God Bless You, Always!-Lise

colechanxbl has sent you a message: hiya!!! hey jay i am a 12 year old kid i watched your videos a long time ago when i was first diagnosed with crohns and im on the scd diet my docter got a grant to do a study for the diet and my mom and i are coaches for it just thought i would let you know because of you i am on swim team baseball soccer and tennis and im never sick!! thanks, cole
Hello! :)

I just wanted to let you know how encouraging I think you are and that I love how positive you seem to be about life! :) You're a great role model for others dealing with these diseases and I congratulate you on how far you've come :) Keep up the amazing work! Thanks,-heather :)
dashnitz has made a comment on Crohns Disease Best thing that EVER happened to me -CURE: haha crohn's boy! 11:15s is epic!! i laughed so hard when you did that. last time i only watched half of this vid so didn't catch that. crohn's boy you're the best. keep fighting pessimism with optimism (just as water fights fire). if there's one thing crohnnies is a good solid attitude and not stupid forums where people compare their surgeries and how shitty their lives are. a right attitude can cure any disease. you'll live to a healthy 120 yrs crohnssbooooyyy. please keep making us smile! 

Kathy-I just want to thank you again for all you did for me and Mike jr.!!I'm amazed at how great your website looks and damn you just keep getting better looking ever day!! (smile).Mike is doing awesome and will be going to his 3rd year of college soon.I don't want you to underestimate how much that phone call and the follow up you did for us.. got us through the most scary time of our lives.!He will never admit it........... (although someday he will)... but if it wasn't for you things could have gone horribly wrong. He actually admitted to me last week .. in an hallmark moment...............that he said that I was the one who did all the cooking and encouragement.. when in fact, I couldn't have done it without you .. hon............. and that's the truth.! What you said in your youtube video about being negative............. it's so true.. and you don't need a name for it. Just stay away from people who want to SUCK the energy out of you.It's all about positive energy. You and I both know it's true.. and so does Mike Jr. Once you learn that, you pretty much "get it".............. whether it's personal or medical.....it works.  I've believed all of that from day one.........and p.s I'm 48 and have never been sick except for a head cold once in awhile

I am emailing today to commend you for keeping up the great work on your website.  I think its very important for people to have an avenue where they can go for knowledge, and advice.  I would be lying if I thought it was possible to achieve the state of 'being normal' once again just by changing diet and taking colloidal silver initially. My Gastro Docs feel I am a rare case as they now decreased my specialist consults to every 1.5 yrs.  Its crazy how they all heard of the SCD diet but give it no merit. Anyways, I just wanted to say keep up the great work!  Take care friend.-Greg

Hello Jay,
thank you so much for what you do.  I fully appreciate this.Brunno Winter

Ch3Weh has posted a comment on your profile:
Hey man, big hello from Liverpool UK. Just wanted to say KEEP GOING! Your videos offer hope and positivity to a LOT of people. I've had Crohn's Colitis for nearly 13 years. Lately things have started to sink again - gonna start the SCD soon! Take care, Matt

Just wanted to let you know.  You are amazing .  My son is on SCD, he has tried and elemental diet, etc and uses colloidal silver,  Aloe and all of the things you mentioned in your paper. He has used predisone from time to time to manage the flairs, but they are in lower doses.  I know others who have gone the remicade route and they just need more and more to maintain their health. My son has been able to play high school football his senior year and is well on his way to root healing which has taken time but we are well on our way to a "normal" life.  Just wanted to give you a work of encourgement on your video's etc on utube. Thanks and keep it up and have a great day! Leisa SchievelbeinI feel like I should be "Crohns Mom" :)!

8:39pm Sep 10
That video is sweet bro. I am happy to see some one fighting for a change. I would love to give some money for a video like that. keep up the good work man
Thanks Jay for this talk. I just recently began my own business and a month after I started getting multiple flare ups and have not been this weak for over ten years, it has left me very behind in work. But I am not giving up and I am starting to feel a lot better now! Thanks for the encouragement!

Thank you. I could not have accomplished any of this without all of you that have spent so much time reaching others like yourselves. –Sean Dooley

krb has left a new comment on your post "SCD- Intro Diet":
I am just starting the SCD Diet, and you give me hope. Thank you.

Hello Jay,
I came across your website and must say... I am thoroughly impressed.  I share your thoughts on the bullshit Drug Administration, and believe whole-heartedly that we can overcome our symptoms with just a change of lifestyle.-Alicia D

ISADAL-Thank u very much for your site, your video's on youtube. It has really inspired me. My sister is only 8 years old and is suffering. The medical world is failing and now i found all these things like the diet, hennep oil etc. THANK U

1:30pm Aug 12
Don't give up hope on trying alternative protocols. I know its frustrating beyond belief and its alot of "trial and error" to find what's going to work for you. But it is soooo worth it when you finally feel your body responding in a good way. The right supplements will allow your body to heal but diet is key. My son responded well to the SCD diet but it took awhile and many times he wanted to give up but he hung in there (its not easy) and stayed on it long enough to become a true believer. You will find what works for you.........just don't give up trying until you do.

Chris R-I'm in Red Deer, Ab.
Just thought I'd let you know... my mom was so close to going in the hospital again,
and because of your info...that I got her on immediately, she didn't have to go, and she's still getting better.
I'm making my own colloidal silver, giving her oil of oregano, & trying to follow the food items combined
with the SBC cookbook.

Drew-Thanks for your enthusiasm, love your outlook on life, your are more of an inspiration than any of the people I know.

Awesome post Jay - thanks for the credit! Hope you're doing amazing! Keep up the great work - youre blog and work is fantastic - our worldis lucky to have you
cheers!happy summer-Ashley

Love the intro song! I have UC diagnosed April 2011, Lost 20 pounds in 2 weeks, wasn't fun at all...thanks for all your videos they are so inspiring...you give us hope bud thanks =) 
I just wanted to tell you how much I appreciate your site and all that you do for sufferers of IBD. I have never felt comfortable donating to websites, although I do give to my church and other charities. I wanted to donate to your site because it is so unusual to come across a site that gives everything out for free just to help others. The fact that it is free and you are not selling anything is what makes me be able to trust your motives.-  Charlene (mom of a 27 year old son with ulcerative colitis)

I have recently started experiencing joint pain. I don't know how I stumbled on to your you tube video but that led me to your website. I was feeling down and discouraged and now my hope is renewed. You seem sincere and genuine. You are being of great service to humanity and there is no greater thing than that. For today I just want to say thank you and God speed. > Sent from my iPhone

Jenna has left a new comment on your post "Only risk in life is not taking the risk, and time...":
My name is Jenna and I came across your site. U are an inspirational person and amazing and positive.

Kristina-I bumped into your blog by Jini Patel Thompson's webpage and I am very impressed with your blog and homepage. I actually bought The Four Agreements after viewing your page, and I do like that book!

What your doing is awesome and Im thankful there's people like you out there wanting to make a difference.-Jon David 

I'm on the other side of the world in Sydney Australia =) ....I hope your family and friends are proud of you for reaching out to so many people.Hopefully I will be writing an email back real soon on my success story. Thank you times infinity for all of your help and support! You are the only person I have come across who has tried alternative medicine to get better. Take care,-Elizabeth

Its so amazing to go from 4 years of daily bloody D to normal health in less than 3 months, so glad I started this :) Thanks for existing-Toby

I came across your site about a year ago and just now looked at it again as a friend sent me your link. Just wanted to say "AWESOME!". Keep up the positive work you are doing. With the work you are doing and telling your story you are part of the change. I see a change happening but feel it might take another 10 years to get there. Yet, it has to start somewhere.I have a 21 yr. old son with Crohn's & UC. He has been on quite a journey.Now he is on a path to do something with the knowledge he has gained. We are considering starting a business to help change the way people view their health. I will definitely keep your info in a file.I believe you will give hope to many who will feel their life is not worth living with this "disease". May God bless you and may you receive all the blessings meant for you each and every day.-SUE

Jay, thanks for your authenticity and dedication to spreading the SCD word.-Jethro

Michael S-Omg this is amazing, It's only been a day and I feel better. I had the right ideas nutrition wise taking vitamins and eating well but it the little things like a low carb diet, chewing your food and fasting at night that made a difference, thank you for helping me out I should have no problem now
Sent from my iPhone

Thank you for all the research and experimenting on yourself that you must have done (I know - I've been doing it too - and spending money that I didn't have to spend on supplements that were either worthless or that I could not tolerate!) and for all the work that you have done in putting together and maintaining your website-Elaine

Hazel-hanks for all the emails to date; they are so informative and you do great work!

I have just subscribed to your blog and completely agree with your thoughts and results.  I have only just started but am looking forward to diving fully into SCD and hope to yield the positive results that you have.  I don't have a name for what I am suffering from, but I just call it "extremely painful".  Thank you for pushing forward with unconventional ideas and for being so zealous in your efforts to help others.  Your hard work does not go unappreciated and you are clearly wise beyond your years.
Thank you,Lisa in CA 

Jay;Interesting article.  I just started receiving your blog.  Recently diagnosed (through emergency surgery) with CD and trying to get a handle on eating.  Now facing steroids.  This is my second week of SCD and feeling so much more in control!  It was through a random search that I found your web site and links to SCD.  Awesome Jay... Thank you!

Hey Jay -
I have to say, this is the most inspired I've been in the last year since being diagnosed with Crohns Colitis. I love your approach. Like you, I plug away on the internet looking for a hope and a cure... only to be put off by the impression I'm dealing with a salesman. I fully understand the need to improve and help sustain your cause, and appreciate the approach you have taken to do so. It seems much more genuine. I look forward to reading your doc and hope that in the near future I can regain my life. Thanks for fighting the fight! –Brian

Stella-Thank you! I just looked it throw and cant wait til the weekend to read it all several times until I get it all!
Hope you're having a good time, you are very inspiring!! I was laughing when I read your own comments about what the doctors says when you get the diagnose... haha! Life feels easy with you’re blog, do never stop!

Justan S-I love your website, your work and everything you stand for, its awesome!!

Jay ,Thank you for your dedication in getting good info out there.  I wish my daughter thought like you.  Still hoping she'll understand traditional meds are killing her.  People like you can change the world.  God bless, -Peggy

peteypete1984 has made a comment on IBD's Crohn's Disease Ulcerative Colitis Joint Pain & Arthritis: ur so right its all the media brainwashing that the pharmacy industry/doctors know whats best NATURALS the way to go were bein scamed thanks JAY peace my brother from canada we live in connecticut so we know the COLD weather too thanks ur such a nice guy 

You are such an inspirational person and I am really grateful to people such as yourself and Jini who have helped so many people. I just wondered if you heard about the fact that the European Union will be banning many herbs by May 1st and that the USA may soon follow suit. I know there is legal action being taken by the alliance for natural health and other bodies to challenge this directive, but I am concerned the big pharmas/government are out to give people no choice in health matters which will undo a lot of good work you do in educating people about the correct approach to health. It would be great if you could do some rallying up on your blog or something to get people to stand against such measures!Thanks again, all the best-Steve

Ok, so I just finished reading your document. Awesome read…especially during work hours.I have few questions that I’ll write down later this afternoon—would love to speak with you when you have a chance. Just wanted to thank you once again. I’m hopeful that my daughter will be included in your free e-book, if not in the first version, then the second…-Nay

Hey Jay. my doctor told me he wanted to put me on Remicade 6 months ago, as he read off the side effects while giving me a reassuring smile i know that i would do anything i could to stay off such an extreme medication.Well im 4 months in on SCD and kicking ass! I tried many of the optimizing techniques you suggested from the get go. anyway i am making great progress in a short time, and wanted to say thank you for inspiring me to succeed at this overwhelming challenge!-Judd

Hi Jay,
I wanted to give you an update on my progress with SCD and the use of some of the tools that you recommended.
I went strictly on the SCD about a month ago and I have had remarkable results. Much better that I ever expected. My body responded quickly and I noticed improvement the second day on the diet.  Within one week, my bleeding had stopped and in two weeks the diarrhea stopped. Really amazing and gratifying to have control over a very difficult problem. Really Jay, thank you for your advice and service to the IBD community –Paul

Marcus has left a new comment on your post "MED FREE E-BOOK PROJECT": Awesome you two, thank you so much for what you do. I am with your help working to getting med free. :)

You are doing a great job spreading the information. I hate hearing my doctors saying: No it has nothing to do with your diet!Thank you Regards –Lauritz

Again, thank you, I am humbled and inspired by your interest. I can safely say the information you selflessly share on your blog and website assisted in my healing. Please spread the word about what is going on here. Peace,-Geoff

Thank you crohns boy for your honesty and support through a truly horrible disease - your website is inspirational and helps to give us some hope of being well again-Sally uk

leisaruth has made a comment on CROHNSBOY.COM CROHN'S CURE COLITIS CURE disease CROHN'S DISEASE ulcerative colitis: You are really great. Keep on going, all of the information that I have gotten from your website has really helped my son and he is looking at a bright future. Keep it up.
Thanks so much for all of that Jay.

Terrific information and a really well put together protocol. Im sleeping easier knowing I have these options.-Steven
jamesbkw1 has made a comment on Crohns Disease Best thing that EVER happened to me -CURE: alright crohns boy, i totally agree with ya ive had crohns for 19 years and as i allways tell people it changed my life for the better, i was 15 when i got diagnosed and at the time my life was going no where i was into crime, drinking, drugs but after i got diagnosed i had to change my lifestyle i dont do crime anymore i dont drink or take drugs anymore and most of the people i hung with back then are now dead or in prison which is where id be now, im now a karate instructor, and life is good.

How are you? I think that is awesome you having started that website. I read Breaking the Vicious Cycle a few years ago, but I was 11 when my colon was removed... too young to know better. I have a couple of older guys I work with who have Crohn's and swear by SCD. I myself had Ulcerative Colitis. I do follow that diet if and when my internal k-pouch gets inflamed.
I will be passing your site on! ;)-Tiff

Hi Jay, This is my first time to message you! But just want to let you know how much your site has helped me. I live in Ireland and was only diagnosed with severe crohns/colitis four years ago, this month, after having being admittted to hospital with severe abdominal pains
So just want to say thanks to you for all the work you've put into helping others like me with your inspiring webpage and site. Yours Sincerely-Graham

campbub has made a comment on Changing my Approach IBD IMPROVEMENT DOCUMENT -Crohns & Colitis Treatment options: your a blessing jay!!! i cant remeamber how i found your site. you helped me out alot. thanks from the bottom of my heart. i thanked god for you. i have healed up alot....no more burning, joint pain almost gone, daily bm normal.

Hi, my name Gordon, and i have Crohn's disease. I am a big fan of yours, i may only be 14 but you are a hero of mine. I am also on the SCD diet and i am currently taking colloidal silver. I really love your blog site, I like how you talk about ALTERNATIVE therapies instead of remicade and 6MP etc. I am currently also on remicade as well, for reasons i have no idea... I am kind of an adrenaline junkie myself. I go on roller coasters, i ride an ATV, i really would like to ride a motorcycle, although my parents say they dont want me having an even bigger chance of dying. But anyway man thanks for this amazing blog website. I hope you respond, Thanks...Gordon N.

I first saw your website back in 2007 when I was diagnosed with Crohn's.  I was very sick as well.  I went to every source of information I could find.  Elaine's book saved my Life. I had the same ups and downs that you did, and it helped to know I was not alone in my long Journey.  I am not one to share my thoughts with others, so I never contacted you.  You should know you are helping many more people then you realize you are.  :)
I strictly followed the SCD diet along with recommended proboitics for 2.5 years.  I am cured, sorry, I am in remission.  lol  Now if I could just get the Crohn's label off my health records!-Billie And thanks dude i feel great and ive been having awesome days! thanks to you!-Sean

Sean wrote:"Good luck Fabio! I found the Special Carbohydrate Diet first then i found Jay on youtube then his site, http://www.facebook.com/l/efef1;crohnsboy.com. The diet sucks at first but you have to keep on it to the T and you will be feeling better in no time, plus the probiotics and vitamins ect. follow whats on Jay document and god man i feel great now and you will too! :)"

Hey Crohnsboy!I want to thank you for taking the time to use your experience to help other people.  I'm sure your site has helped a tremendous amount of people, just as it has helped me. –Josh

alecherring has made a comment on CROHN'S CURE COLITIS CURE CROHN'S DISEASE COLITIS IBS CURE SCD DIET: Hey everybody who is sick with Crohn's, listen to Crohnsboy and others who have gotten better. It really can happen and has happened for a lot of us. I have been of meds and have controlled my Crohn's through diet since 1998. Almost no problems at all.

dashnitz has made a comment on **NEGATIVITY** CROHN's CURE COLITIS CURE IBS ULECERATIVE COLITIS TREATMENT AUTISM: When I first got diagnosed I was in a miserable state. I'd read about this illness for over 6 hours a day on the net and see forums where people list their medications and surgeries proudly almost like badges. It made me feel awful. I'd walk for miles a day with tears filled in my eyes. This video was the ONLY one on the net that made me feel good. Now I try to focus only on the positive and I avoid crohn's forums like a plague. Let's all try to focus on healing instead of suffering.

Dude.. you are the kewlest guy ever!!! You are so right! Mike jr. is doing great still.. to this very day. He just turned 20 so........ that means he has been doing great for 2 years now! All thanks to you and your support.!

socceric17 has made a comment on Crohns Disease Best thing that EVER happened to me -CURE: I completely agree. Crohn's Disease completely changed my life around. I have a much more positive outlook on life. The saying goes, "You don't what you got till it's gone." and when you get this disease and then get better, you understand how fortune you really are.

theCANMANshow has made a comment on Crohns Disease Best thing that EVER happened to me -CURE: Inspiring CrohnsBoy! I plan on doing exactly what you are doing too! I have colitis and started a youtube channel documenting my journey. Maybe I'll start a website too like yours! Thank so much man! 
D- crohns boy, you better keep making us vids!! you're the only inspiration i got for this shit (no pun intended). while everyone's negative on the web i turn to you cuz you make me feel happy and inspired. you're my own personal super hero, crrrooohhnnnhn's boooyyy!!!!

Butch- ALOHA JAY! I have been  looking on the internet for  anyone who may have Crohns disease since I have been affected with this since I was your exact age I found  out at 24 years of age that basically my life was over I thought !Your story on video hit me right in the heart since I too was ready for the  booby hatch when I got the sad news

tazzy1229 has made a comment on **NEGATIVITY** CROHN's CURE COLITIS CURE IBS ULECERATIVE COLITIS TREATMENT AUTISM: AMEN !!!!!!!! I totally agree ! Smiling laughing and being positive DOES affect your health. If you can laugh and stay positive you can get through anything ! from one crohnnie to another ... thanks for the post ! 

Hey Jay,
So it's been one month in to the whole new perspective on life and things are fucking awesome!
I'm not on any meds, I actually feel awesome, and I haven't had stomach
pain. I really liked your idea of changing my mind set on what I eat so
I tried it; I've started gaining weight. Within the month I've gone from
137 lbs to around 143. This time it's honest weight not the water weight
you get with the 'roids.-Dimitri

1 comment:

Anonymous said...

Good for you Jay! Keep going and keep us motivated. Whenever I feel down about my CD I always go to your website for education. After a resection a year ago and a positive follow-up colonoscopy 6 months later, I decided to turn down the steroids and give SCD a go. It's been about 6 months now and it seems the diet has slowed down the fast pace digestion (and pain and weightloss). It does take dedication and strict committment but I find it fun to eat healthy food (kale) and find new recipies (for kale). (I love kale) I even re-did my intro diet when you suggested to take it from the beginning. I too wanted to jump to the end product and kind of skipped through that part too fast! I'll know if it's working on my next follow-up visit and will let you know. If I didn't happenstance on your website I would have never known about SCD. Keep up the good work and know you have loyal followers. SAKS, US.